Positive PDA

PDA (Pathological Demand Avoidance) is widely recognised as a profile on the autism spectrum. PDA individuals share characteristics with others on the spectrum but also have a distinct cluster of additional traits which focus around the avoidance of everyday demands and the use of ‘social’ strategies as part of this avoidance.

Whilst autism is a well-recognised term, our understanding of the full breadth and complexity of the autism spectrum is still evolving. Autism is dimensional, it involves a complex and overlapping pattern of strengths, differences and challenges that present differently from one individual to another; and in the same individual, over time or in different environments. A cluster of traits can be called a presentation or a profile – in some cases this can be quite different from what some people think autism ‘looks like’.

Recognising these profiles signposts the approaches or support that will be most helpful for each individual. The approach required for PDA individuals can differ greatly from the approach that may be taken with other autistic profiles, and so it is beneficial for families, educators, social workers and practitioners to be able to recognise and understand the nuances of PDA.

Positive PDA is committed to raising awareness regarding pathological demand avoidance, providing a platform for discussion and resources to complement existing PDA groups and charities. Our aim is to open a dialogue between professionals working with PDA profile autism, researchers, and families and individuals who live with PDA. We do this by running conferences, providing online summits and organising events to bring together experts who support this specific profile and provide information and resources.

As we grow so will our directory of groups, communities and professionals, providing an ever expanding global network to positively impact PDA resources world wide. 

At Positive PDA we aim to be fully inclusive, we are passionate about providing ease of access to resources to those who may not always find this so easy. Whether this is due to disability, geographical, political or socio-economic restrictions, we want to at least attempt to remove some of the barriers you may face when seeking information and access to professionals and resources. Through our events, we work to ensure that all communities, from all backgrounds, regardless of location or financial situation, have access to valuable and productive resources to enhances the lives of those living with PDA. 

Want to Join Us?

If you are interested in finding out more about Pathological Demand Avoidance and would like to receive notifications about our conferences and FREE online events, including the next international Positive PDA Virtual Summit, sign up to our monthly newsletter containing relevant advice and information.

We hate spam so we won’t send you an email just for the sake of it, but we would love to keep you informed of the latest developments. To help us know who is using our services

Rest assured that all data is kept securely in accordance with GDPR and you may unsubscribe at any time.

Virtual Summit 2020

The first ever virtual summit focusing on Pathological Demand Avoidance was held online between the 3rd and 7th July 2020. It brought together a varied range of professionals and experts working within the autism community, to promote the awareness of Pathological Demand Avoidance, known as PDA. Over 5 days, we presented 20 webinars, bonus content and question and answer sessions to over 4000 people from 45 countries over 6 continents. And all completely FREE!

The Summit brought together of 20 hand selected, leading experts on PDA; including, a senior solicitor, consultant speech and language therapist, educational psychologist, behavioural nurse, leading educational consultants, SEN business and marketing consultant, teachers, researchers therapists, as well as PDA parents and individuals, all with knowledge and insight into this specific neurodivergent profile.

Covering topics including parenting, bereavement, emotional regulation, behavioural management, holistic therapies, education, speech and language and SEN law, our speakers shared their professional expertise gathered over many years of listening, learning and developing tried and tested solutions and strategies to the challenges faced by PDA individuals. Many of our speakers are neuro-divergent themselves, offering valuable insights into the minds of those amazing PDA people that we love so much. This summit provided so much knowledge to help parents, families and professionals better understand and manage PDA. We have been absolutely blown away by your feedback and can’t wait to bring you another free event, even bigger and better!

Over 4000 Attendees
From 45 Countries
Over 6 Continents

You may have missed this incredible event, but you can still access all this event’s brilliant webinars. We have put together for you a package so that you can keep the advice of our speakers in your ‘Back Pocket’ with a pass that allows access to all 20 presentations and a bonus video from Sally Russell of the PDA Society, for up to an entire year. 

That’s 20 experts specifically discussing and providing insights and solution based strategies around Pathological Demand Avoidance for you to benefit from. As anyone who has ever sought help for PDA will know, this kind of advice can be hard to find and inevitably costs a small fortune. We want to give you the wisdom of all our wonderful experts in one place for just £135. We understand that for some, especially parents, this is may still be out of budget, so join up to our mailing list as we occasionally offer Flash Sales giving this to you for a crazy low price!

Presentations At The Positive PDA Virtual Summit 2020

We want to thank all our amazing speakers who contributed their time and expertise and resources to this incredible event. We were able to help SO many people over the course of just 5 days. Discover more about our Virtual Summit 2020 speakers here, contact them and learn more about the resources they have that may be able to assist you, your family or your organisation.

Future Events

We are passionate about creating events where access is simple and free. Autism and PDA don’t just effect those located in countries where resources are available or those who have the financial ability to access them. Every person, every family, no matter where they are from in the world, what ever their background, or culture, or situation deserves to be able to receive support. Pathological Demand Avoidance is a condition that knows no boundaries. And so we won’t put any in place and will continue to provide free access to our live Virtual Summits. We want to make every effort, within our capability, to better represent this condition globally. If you want to get in touch to tell us about resources available in tour local area, or you know someone in your country who is a PDA expert, please contact us on the form below so we can represent a more diverse picture of PDA.

Your support through buying passes and tickets to events will allow us to continue our mission to ensure we provide a FREE option for everyone to access information while we donate to PDA Society to support their resources and research.

POSITIVE PDA VIRTUAL SUMMIT 2.0
To be held in February 2020, the next virtual summit will follow the same format as the first and be totally FREE to attend online.
POSITIVE PDA CARDIFF
The first Welsh conference for Pathological Demand Avoidance, as postponed due to CoVid19. April 2021 - TBC
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Positive PDA Virtual Summit 2021

Just like our first Virtual Summit this will be an entirely FREE event.

To ensure the Summit can reach, not just professionals during business hours, but those with PDA or trying to watch around the challenges of family members with PDA autism, the event was designed to be open and inclusive with flexible round the clock access.

Our 24 hour event programming, allowed our event to become a global success and we are so incredibly proud to have reached over 45 countries around the world, many where access to resources and information regarding autism and PDA is very limited. We were told we were crazy for creating such a large Summit and keeping the entire event completely FREE, but for us as Positive PDA it is so incredibly important to ensure all communities, from all backgrounds, regardless of location or financial situation, have access to valuable and productive resources to enhance the lives of those living with and working with Pathological Demand Avoidance.

Positive PDA Cardiff Conference

Due to CoVid 19 the Welsh Conference, that had been scheduled for April 2020 had to be postponed. We are still finalising the dates with the venue and will be able to give you more information on ticket price, times and speakers in due course. In the meantime, if you would like to reserve a place at the conference please fill in the form below and we will ensure you have priority access to tickets before we put them on general sale. 

The conference will focus on speakers for professionals working with PDA individuals, we will also be providing speakers for parents of children with PDA and adult individuals. We encourage professionals to attend these talks also to gain a wider awareness of the concerns affecting parents and individuals. 

Our Keynote talks will be announced via email soon, so please sign up below to keep up to date with announcements. 

Keep Up to Date With New Events

If you are interested in finding out more about Pathological Demand Avoidance and would like to receive notifications about our conferences and FREE online events, including the next international Positive PDA Virtual Summit, sign up to our monthly newsletter containing relevant advice and information.

We hate spam so we won’t send you an email just for the sake of it, but we would love to keep you informed of the latest developments. To help us know who is using our services

Rest assured that all data is kept securely in accordance with GDPR and you may unsubscribe at any time.

Supporting The PDA Society

Positive PDA fully support the work, research and resources provided by the PDA Society. We would like to thank them for their support and contribution to our event, in particular Sally Russell, Katie Mabberley, Vikki Threlfall, Paula Webb, Debra West and Hilary Harvey.

The organisation is a registered charity in England and Wales providing information, support and training for those living and working with PDA. Run by a group of volunteers, they work tirelessly to raise awareness, increase acceptance and empower people to take action in relation to PDA. You can find out more about the PDA Society including a links to their extensive resources on their page here.

From proceeds raised by the sales of our Back Pocket Pass we are really pleased to announce that we have already made a donation of £3000 to the PDA Society. We know that they will be able to use this to continue to empower even more people to take action in relation to Pathological Demand Avoidance. 

Did you know you can also nominate the PDA Society on Amazon Smile so that you make a donation every time you shop on Amazon at no extra cost to you? Neither did we! So nominate the PDA Society now and give each time you shop!

Resources From The PDA Society

What is PDA?

For more information about autism and PDA, demand avoidance, identifying PDA, diagnosing PDA and the latest research.

BOOKS

An extensive list of books about autism, PDA experiences and stories and support strategies.

INTERNATIONAL

Not from the UK? The PDA Society has a list of organisations around the world to support and provide you with further resources where you are.

Research

Academic papers from research institutions developing the evidence base collated by the PDA Society.

Healthcare Professionals

Further information and resources for healthcare professionals working with autism and PDA.

EDUCATORS

Essential information for all those working in an education setting with PDA individuals, including how PDA may look in school and masking.

Social Care Professionals

Information for Social Care workers and support systems in the community.

Training

The PDA Society offers training courses for parents and carers, educators and for supporting PDA Adults.

DONATE

If you would like to make a further donation to the PDA Society (and you've already bought our summit pass!) you can find out more here!

The PDA Parent Sanctuary

From Co-Founder of Positive PDA, Nicola Reekie, the PDA Parent Sanctuary offers a combination of solutions based and holistic therapies for parents of young people with PDA. Not just another group for PDA parents, Nicola offers you the opportunity to work to become a calmer, more resilient and happier parent because she knows first hand just how tough parenting a PDA child can be.

Find Out More

Learn more about the PDA Parent Sanctuary here.